Rereading my last post, I think I didn't do a very good job conveying how things really are. Nobody said this would be easy and there are harder days ahead. Sandi's condition is not holding steady. There's not really any specific news or dramatic change, but it is clear that day by day the disease is taking its toll.
I don't really know how much time we have left together, but whatever it is it will be too short. Yet, the longer it is, the more suffering there will be. There comes a point where shorter is better. I don't think that day is far away. Yet, there are still a few things left to do.
To those of you who pray, please continue. Pray for courage and grace... and sleep. First for Sandi, and also for the rest of us. It is a difficult road, but we will walk through.
FWIW, though I've heard it many times, this song seemed particularly on point today...